Multiple Sclerosis Treatment

Boring #MSMommy Update…Yay!

After some time, I am finally taking the steps to fight my MS as I restart my weekly Avonex shots. I have a terrible habit of taking “Holidays” from all the doctors appointments, shots and IVs, all of that crap. Because when I was first diagnosed I was the dream patient. I did whatever the doctor instructed me to do. After all, he or she had spent a lot of time and money on getting the knowledge that they have. Blah blah blah.roberteyerollI was a good obedient patient but after years of being poked and prodded,  the hours I spent reading old magazines in waiting rooms, I have endured countless painful and fruitless procedures, I finally had my epiphany. It’s my body and It’s my life.

bikram-yoga-bow-pulling-poseBlessed? Lucky? I’m not sure but my disease has been very stable the past 8 years, so much so that I was able to move out-of-state twice, meet Mr. Sexy Pants, have a wonderful baby, and move back home. I refuse to let my illness stop me. Been there. Done all of that. If you are newly diagnosed reading this, please know that your life isn’t over with the diagnosis.

There is a lot to be said about diet and exercise. I’m not gonna say it here but there’s a lot.

MS Advocacy

Thousands of Multiple Sclerosis patients are getting worse each day, when currently used medications are not working for them or their body refuses to accept the medication.

Another Option is needed and this Option Should be Lemtrada

The FDA on December 30, 2013 Denies the use of Lemtrada for MS Patients. THIS was A sad day for people with more active Multiple Sclerosis.

Lemtrada has been approved worldwide, but not good enough for us it seems, in the USA.

We are more than 400,000 strong (living with MS) in the USA
WE NEED YOUR VOTE to give another OPTION to those that Can benefit from this medication; hoping to keep them from severe disability.

YES, WE NEED YOUR VOTE.
Also we need you to write directly. WE NEED YOU TO send emails. –
We need this request to go Viral —

• Let us FLOOD the OFFICE of this FDA committee with emails, WITH the information shown above.
• Please copy and paste what is tyoed and attach your name to that email and then send to: druginfo@fda.hhs.gov where the communications are reviewed and forwarded to appropriate individuals for response.

In contacting the office of Ms. Glendolynn Johnson, who staffs the Peripheral and Central Nervous System Drugs Advisory Committee, I was advised that the Moveon.org petition, and all communication voicing consumer or prospective patient views, should go to druginfo@fda.hhs.gov where the communications are reviewed and forwarded to appropriate individuals for response.

That’s why I signed a petition to FDA Drug Info and Ms. Glendolynn Johnson, Peripheral and Central Nervous System Drugs Advisory Committee, which says:

“We seek an FDA reversal on their December 30, 2013 decision to NOT approve Sanofi’s Lemtrada, a Multiple Sclerosis Treatment. Patients needs this Medication-option Approved”

Will you sign the petition too? Click here to add your name:

http://petitions.moveon.org/sign/thousands-of-multiple?source=s.fwd&r_by=9845429

Thanks!

MoveOn Petition for MS Medication

http://petitions.moveon.org/sign/thousands-of-multiple

Subject: Thousands of Multiple Sclerosis patients are getting worse each day; They need another Option, another choice

Hi,

I signed a petition to FDA Drug Info and Ms. Glendolynn Johnson, Peripheral and Central Nervous System Drugs Advisory Committee which says:

“We seek an FDA reversal on their December 30, 2013 decision to NOT approve Sanofi’s Lemtrada, a Multiple Sclerosis Treatment. Patients needs this Medication-option Approved”

Will you sign this petition?

Thanks!