multiple sclerosis

Boring #MSMommy Update…Yay!

After some time, I am finally taking the steps to fight my MS as I restart my weekly Avonex shots. I have a terrible habit of taking “Holidays” from all the doctors appointments, shots and IVs, all of that crap. Because when I was first diagnosed I was the dream patient. I did whatever the doctor instructed me to do. After all, he or she had spent a lot of time and money on getting the knowledge that they have. Blah blah blah.roberteyerollI was a good obedient patient but after years of being poked and prodded,  the hours I spent reading old magazines in waiting rooms, I have endured countless painful and fruitless procedures, I finally had my epiphany. It’s my body and It’s my life.

bikram-yoga-bow-pulling-poseBlessed? Lucky? I’m not sure but my disease has been very stable the past 8 years, so much so that I was able to move out-of-state twice, meet Mr. Sexy Pants, have a wonderful baby, and move back home. I refuse to let my illness stop me. Been there. Done all of that. If you are newly diagnosed reading this, please know that your life isn’t over with the diagnosis.

There is a lot to be said about diet and exercise. I’m not gonna say it here but there’s a lot.


Eek! The things I worry about #msmommy

320761_1898451302784_2327013_nTo Be Updated:

1. I tend to have a somewhat twisted sense of humor. I think pictures like this are awesome! However, as a promise to Mamaw I will try my best to refrain from embarrassing my child. Even though, the kid in this picture shouldn’t be embarrassed. He’s cool as shit.

2. My inability to teach the Peanut how to drink from a cup. I’m afraid she will be doomed to a life of straws and for this I am sorry.

3. My experience as a baby-sitter has me teaching a toddler how to say, “Fat F@%Ker”. (It was adorable! He would say, “Bat Buckaah.”) I realize now that this was maybe wrong for me to have done.

4. I am not sure if all toddlers break for the door every time it opens but I’m definitely getting a sense that she is trying to escape. I promise myself (and her) that spring is coming and she is gonna LOVE the swings when we hit the park for the first time.

Cousin Adam on swing for the first time

Cousin Adam on swing for the first time

5. I am also starting to think that all toddlers walk around with some sort of head injury. It would explain a lot. The constant stumbling around and bumping into things. Sure they are still new to walking but when, as a society, are we going to take notice of this ever-present concussive population.


Dizzy yet?

5. Spinning. Spinning. Spinning. Okay now that I really think about this, I’m starting to wonder; Could this be a side effect to the concussions? Or is it something more like my daughter’s secret desire to be Wonder Woman and if that’s the case. Rock On! I gotta get on to making the costume. DIY Fun!!

6. The little one’s OBSESSION with anything Daniel Tiger and/or Mickey Mouse Clubhouse. Yes I admit that I let my daughter watch a little T.V. here and there. I don’t think I could live without Daniel Tiger. How would I get anything done?!

7. The Munchkin is 14 months old now and she refuses to eat anything that isn’t puree. I am in a state of constant worry that she isn’t getting her nutrition to the point where I’m starting to feel bad for taking her off of formula. However, Dr. Baby Whisperer says to keep tyradoing what I’m doing. On a happier note she has begun to slightly munch on a specific cookie made by Gerber (bastards!) and she is touching food (but only if its dry). Whatever Works!


* I no longer worry that my walking will influence hers. Human beings are hard-wired to walk. I believe that this particular skill isn’t learned through observation. I don’t know what I was thinking other than being self-conscious.

The Munchkin Reading

This Book is a Thriller!

* I no longer care when Mamaw (a.k.a. The Best Mom on the Planet) refers to the Munchkin as “her baby”. She is too wonderful not to share.

My quest to feed a picky eater

I have been wanting to make my own baby food for sometime to save money and to further my quest in getting the little one to eat something more than puree baby food. I’m using carrots because this is one of the culprit’s favorites. Here goes nothing:






My carrot mash was ready. My first attempt did not go very well. The carrots were way too lumpy for the Munchkin and she actually started to gag without having had tried any of it. I am gonna have to keep an eye out for her and her ‘acting’.


Yea she hates it.

My Second attempt yielded a much smoother texture. I added more water and blended for a few more seconds but that too was also a no go. At this point however she was over all of it, she even refused her all time favorite – sweet potato. We pressed the reset button with playtime and waited about an hour to try again with dinner. She ate 4 oz. of Gerber puree sweet potatoes.



That’s alright. I will keep trying! She will be interested someday.

My Personal MS Update #msmommy

MEMy friend, Mr. Multiple Sclerosis is still on a steady break. I’m so LUCKY! Take that!

I signed the paperwork Monday, so I should start to receive my Avonex shipments soon. It has been a couple of years and I’m not looking forward to it. Is it gonna make me feel yucky? Yeah most likely. How will it affect me and my taking care of the little one? How long will the side effects last? One day? Two? How is my Ibuprofen inventory?

I will find out soon, I guess. Eeek.

I am happy to be back on some sort of MS treatment though. Who knows when my luck will run out. Better safe than sorry, right? I’m back to the grind.

MRI Could Stand for…

Most Rude Invention? Magnificent Round Igloo? Molecular Re-scrambling Invention? Mediocre…I got nothing.

I’m having my second one done today. I have one every 5 years or so, only my new neurologist Dr. Hot Pants would like to see a spinal cord study this time. So I get to play “Pretend I’m not having a muscle spasm” or my favorite, “Oh Sh**, I think I got to pee” twice this year.


Caving in to the Crying-It-Out Pressure

Update on having a set bedtime for Lenna: Not good.

I had one successful night and then we had a bad night where all was lost. After an hour of crying I caved. And once again, I woke up on the floor next to my daughter’s crib and she was snuggled up beside me.  This is hard.


My daughter with her Binky

My Problem: My mom calls me a nervous mom and therein lies my failure as a parent. It’s the truth, I am a little, but it still hurts my feelings that I come across as “nervous” to her. Yea, I want my little girl to eat. Yes, I want my little girl to get all the rest she can. Yes, I want her to grow up self-reliant and confidant and not mommy-dependent. She is already beautiful and smart.

So having said that; I promise not to weasel my way out of teaching the little one about bedtime.

I promise to keep at it with the finger foods, spoons, and sippy cups.

I promise to find a local liquor store and “relax a bit”.



Bedtime Routines & Other Cruel and Unusual Punishments

I lie this is only about one stupid bedtime routine.

The idea of change for me is scary but the importance of my little one’s sleep and mine depend on a bedtime routine that works. So here we go:

DorothyI started the morning by waking her early. My theory is she has a 4-6 hour awake time and her afternoon nap is interfering with the bedtime. Lenna wakes up from her afternoon nap at 3:30 (ish). The plan has been set in motion.

There really is no plan, I’m just trying to get the timing of “Drowsy & Bedtime crap” right.

      • Dinner
      • Bath
      • PJ’s
      • Playtime which includes Books – etc.
      • Last Bottle
      • Put in crib with Binky (Pacifier – please don’t judge) and pink Panda
      • 5 minutes of crying -OR-15-30 minutes of fussing (Lenna fussed.)
      • Return to give Binky and pink Panda
      • 5 minutes of crying -OR- 15-30 minutes of fussing (Lenna cried for almost 30 seconds then fussed for 20 minutes.)


tumblr_ltnymfq4NX1qen75uIt’s really not any surprise she fell asleep easy, my daughter is amazing. I’m the one that fails at parenting.